Common Questions and Our Answers to Them
Q1. What are the arguments for using a death benefit to encourage
families to donate the organs from their deceased loved ones?
Q2. What are the arguments against such a death benefit?
Q3: Won't family members be utterly disgusted and/or deeply insulted by
any attempt to offer them money for their deceased loved one's organs?
Q4: Doesn't a death benefit put a price on the human body, which many
people find offends their sense of human dignity?
Q5. Dont opponents of financial incentives also say they
wont work?
Q6: Doesn't the National Kidney Foundation vehemently oppose any sort of
monetary compensation for donating organs?
Q7: Why $5,000?
Q1. What are the arguments for using a death benefit to
encourage families to donate the organs from their deceased loved ones?
A. Supporters say it will save thousands of lives a year and shorten transplant waiting
times for tens of thousands of Americans, greatly improving the recipients' quality of
life.
Q2. What are the arguments against such a death benefit?
A. Opponents say it starts us down a slippery slope, that today it might be a death
benefit for the act of donating, but tomorrow it'll be payment for the organs themselves,
the day after that it'll be payment to living donors, and after that it'll be traders
buying and selling human organs like hog futures on a commodities market. We say
that's preposterous. We think a standard $5,000 death benefit will be adequate to
double or even triple the supply, and that this will end the shortage, along with any need
to have living people risking their lives as living donors. The people waiting and dying
for organs aren't concerned about any "slippery slope." As far as they're
concerned, our organ transplant system has already fallen off the cliff.
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Q3: Won't family members be utterly disgusted and/or deeply
insulted by any attempt to offer them money for their deceased loved one's organs?
A: Yes, and so would we if we were approached in such a crude way. That is why we
were careful to spell out the exact language
that we'd like to see used, so that the family will understand that they're not being
offered payment for their loved one's organs, but a societal thank-you gift as a token of
appreciation for their life-giving act of community service. And they can always
donate the gift to their loved one's favorite charity. Why would that be offensive?
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Q4: Doesn't a death benefit put a price on the human
body, which many people find offensive?
A: No,it only seems that way to those who don't fully understand the
proposal. Once people realize it's a standard amount, rather than an amount that is
adjusted according to the actual value of the organs, and once they realize it can be
refused or donated to a favorite charity, they are much more accepting [read the thoughts of one such person here]. Most people have
no problem with death benefits being paid to servicemen killed in the line of duty, and
don't regard the latter as a vulgar attempt to "buy off" the family. It's
a thank-you gift for a life-giving act of community service - a token of
appreciation. But even if some people still find it offensive, what is more
important the lives of the people dying on the transplant waiting list, or the
feelings of the people who oppose even trying financial incentives? You decide.
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Q5. Dont opponents of financial incentives also say they
wont work?
A. Yes, they sometimes say that. But the available evidence suggests otherwise.
Economist David Kaserman of Auburn University and his colleagues conducted a survey, and
found that even modest amounts of monetary compensation ($500-$1000) could greatly
increase the rate of donation (see Adams, Barnett, and Kaserman, Contemporary
Economic Policy, 17: 147-155 (1999)). In the real
world, Spain in the late 1990s found that compensating families for donating the organs of
their deceased loved ones greatly increased the supply. But here in the U.S.,
financial incentives have never been tried. We want to give them a try, for the sake of
the people dying while waiting for transplant operations.
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Q6: Doesn't the National Kidney Foundation vehemently oppose any sort
of monetary compensation for donating organs?
A: Yes, they do. But the American Medical Association, The United Network for
Organ Sharing, and the American Society of Transplant Surgeons have all conducted vigorous
internal debates about the ethics of financial compensation, and all have officially
concluded that some types of compensation can be done in an ethically sound manner, and
have advocated pilot studies, as have the American Association of Kidney Patients and the
Florida Medical Association. But as to the NKF, we simply disagree with them,
vehemently. Here are some of the things they say, and our responses.
They say "Payments would be very easy to start...but impossible to
stop."
We say our government could stop payments any time our elected officials
so chose. And if such payments do become impossible to stop, it'll be for one
reason: because they are saving lives!
They say "Money is an insult to donor families."
We say a thank-you gift for community service is perfectly acceptable,
and that refusing to even test the effectiveness of such compensation is a grievous insult
to the thousands of Americans who suffer and die each year while waiting for organs that
never come.
They say "There is no way to do this and maintain our values as a
society."
We ask, "What values are they trying to maintain that are more
important than the more than 6,000 lives that could be saved every year, not to mention
the vast improvement in the quality of life of the tens of thousands who could get a
kidney and get off dialysis?"
They say "The voluntary system we have, free of coercion or
commercialization, is the only ethical way medicine can be practiced in the United
States."
We say there is nothing ethical in letting people die if a monetary
thank-you gift could save their lives. Besides, the current system is not free of
coercion, as family members often feel pressured into making a living donation to a
relative. If we could end the shortage by doubling or tripling the rate of cadaveric
donation, we could eliminate the circumstances leading to this type of family-imposed
coercion.
They say "We must be able to say to our patients and the public, we don't
pay for organs, period. We must have a voluntary system so that all families who made a
decision to save someone's life can proudly say, we 'donated' organs."
We think families would be even prouder to say, "We donated our
loved one's organs, and on top of that we donated our $5,000 death benefit to our loved
one's favorite charity."
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Q7: Why $5,000?
A: Five thousand dollars is enough to convey to families how deeply important the decision
to donate is, and not so much as to make anyone jump up and down as though they'd won a
lottery, i.e, it's not so much that it'd be viewed as an amount that people couldn't
refuse. We view it not as coercive in that sense, but as a substantial reward that
will encourage people to do the right thing. And, the fact that it is a round sum
emphasizes that it's a gift, like something one might get from a rich relative upon
getting married, and not tied to anything from life's more mundane economic realm.
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